We went to the Dr's at the Hospital yesterday and he said it could be from 6 to 12 months b 4 things come good... a bit of a bummer... if we can't go to church for that long... well I think it will take a tole on me as that is my social outlet... I’m a bit scared really... Especially if we can't go out anywhere because he ‘might come into contact with germs’ etc...The Dr's said he’s still got the Anaemia that’s a definite... Also the vit b12 deficiency is evident… Even though the Dr’s gave him one injection each day while he was in hospital last week… apparently enough for at least 5 years… But Aaron’s body did not use any of it… It has all gone somewhere but no one knows where… Magically it has disappeared… It took them 4 days to find out what injection he was given on the second day because he was given a red injection… Where as the day before the vit B12 injection was yellow… The Dr’ were baffled… I’m sure they thought we were fibbing or something… Perhaps too many drugs. :p Eventually when they found out we were told that it was a vit K injection… Thank goodness he did not have thick blood as this could have caused blood clots… I think the nurse had a hard night that night and was picking injections with his eyes closed… The Dr’s are still waiting on the other results of the other blood disease they think he has got......If his brother is a match for donating bone marrow they might just give him immune suppressant drug and see what his body does by itself at first....cause a transplant is really serious... The way they were talking last week it sounded like things wouldn't take that long but if he has the transplant he will be at least 6 to 12 months recovering from that and may not even be able to go to work... So basically it sounds like they will try the immune suppressant drugs first so his immune system stop attacking his blood cells… Then they will do the transplant if there is not enough change in that ... but it could take 6 months b4 they decide that the immune suppressant is not working... They have to take bloods at the hospital every week(at least 2 times) to monitor him and the progress if any of his blood...
I think I just have to be really organised and make plans to visit (healthy) people for a few hours every other day or something so I can get my social fix.... He is okay to be left alone for a few hours or so at the moment... He really wants to go back to work... But I think he would only be able to do a few hours at a time... If any at all, and I would have to drive him because he would be stuffed if he walked from the train station… Catching the train is not a good idea because it is a great place to catch germs too…He can not go to the movies or shopping centres, and buffet meal places are definitely out of the question… As these places are all really good for catching germs… So is going to the hospital but most of the people in the hospital where we go have low immune systems too… So we just have to keep our fingers crossed… It’s frustrating for us all… I want to help him but we are all so helpless!! The Dr’s are having trouble deciding what to do with him… What hope do we have?
Aaron just wants to not be scared about the kids jumping on him… that he will not bleed internally... Also that germs will come into our house... As his immune system will be very low... And kids are so germy… We have had to modify our family interactions so much… Aaron and I do not kiss on the lips anymore… The boys are not allowed to hug him with their faces near his… Glen 20 is our new best friend!!
We are in for a possible 1 to 2 years of this treatment... Till he feels semi normal or at a level where he can function better.... No one knows much about the disease and no one can give us conclusive answers… It all depends on his reaction to drugs and his body’s ability to regenerate it's self etc.
I don't know how he will be when he undergoes the treatment in the hospital… The doctors are not really giving us much information either… We just know that they do not do this treatment much as it is really specific to Aplastic Anemia… And because not many people have this disease … (I think they have seen one or 2 cases in the hospitals history) well basically it is all a bit of an unknown… not particularly reassuring really…
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