5th 0r 6th rejection confirmed

We were both so disappointed to have it definitely confirmed on the 31st of December 2007 that Aaron was rejecting the transplant yet again... It seems every time he tries to get ahead he takes 15,000,000 steps back!!! He's had huge ulcers slowly getting worse so that they now are covering his entire mouth... The inside of his cheeks are white and pussy looking... He has shown me once but does not wish to worry me so he has not shown me for at least 3 weeks now. The stomach & intestine is guaranteed to be 10 times worse than the mouth... He has had such huge stomach pain... When he eats things at times he has to spit out the skin that just falls off from the inside of his mouth. He said to me the other morning that his organs felt like they were liquefied and all pooling round his back as he was lying in the bed... There is just so little joy in life at the moment... He complains so little... It really amazes me!!! He doesn’t think he is brave or patient... but i know he is... He finds it hard to deal with the kids at times because he is in such pain... The littlest things they do tips him over the edge... He does try.. I worry for the kids... Ethan is on the verge of tears all the time.. & Izra is just starting to chuck massive wobblies... Yelling so loud at Dad... Being very defiant especially towards him. And the aggressiveness is BAD!!! What can you do?... Just keep plodding along... Hoping for a brighter tomorrow...

Ethan asked me today if this year (2008) would be better than last... we really did have a hard year... (along with so many others) Especially towards the end! All I could say was, "I hope so".

When Aaron hit that 18 month mark; as he was told by the Dr's... he should be able to go back to work at least 2 to 3 days a week... and he was still struggling with going for 1/2 a day once a week.. Well he's spirits plummeted... We no longer laugh as much as we used to... (He has the best pout! I reccon he could pull his bottom lip up over his body and use it for a sleeping bag!!!)

Something that Aaron did to lift his spirits this week was....He purchased a steering wheel to play PC games... that should give him some entertainment... & a bit of a boost for a little while...